“Rosaline, they’re saying it’s hereditary,” said her father.
“I think this is going to have implications for us.”
As it turns out, never a truer word was spoken.
—
Donegal Amy, a rare inherited disease from Ireland
Written by Rosaline Callaghan
A mix of memoir, geography, history, science and practical tips on living with the condition, this book details Rosaline’s forty years of living in the shadows of Donegal Amy.
Rosaline Callaghan tells her story of Hereditary Amyloidosis Thr60Ala, a rare, progressive and ultimately fatal disease, for which, until a few years ago, there was no treatment.
Known throughout the world, where it travelled with the Irish Diaspora, as Donegal Amy, it originates in a fifteen mile ribbon of coastline in North-West Donegal.
Published 2022
Publisher Roscara Books
ISBN 978-1-7396244-0-8