International Conference 2025

Moving Forward

For doctors, health care professionals, patients, families and caregivers.

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Programme

A weekend for expertise, lived experience and shared momentum

Download the PDF programme Guest speakers
Conference programme cover

Schedule

Conference programme

Friday 13 June 2025

6.00–8.00 PM
Welcome Reception
8.00 till late
Evening Buffet

Saturday 14 June 2025

8.45–9.30
Registration
9.30–9.40
Welcome and Housekeeping
Rosaline Callaghan, Conference Host
9.40–9.50
Welcome to the City
Mayor of Derry City and Strabane
9.50–10.20
ATTR Amyloid Neuropathy in the Era of Treatments
Professor Mary Reilly, Consultant Neurologist, UCL, London
10.20–10.40
ATTR Amyloidosis (T80A) in Northwest Ireland
Dr Sinéad Hughes, Consultant Cardiologist, Altnagelvin Hospital, Derry
10.40–10.50
Living with Wild-type Amyloidosis: Patient Story
Paul Pozzo, Chair of Amyloidosis UK
10.50–11.05
Cardiac Care in Donegal
Cathy Farrell, Registered Advanced Nurse Practitioner, Heart Failure Integrated Care, Letterkenny
11.05–11.20
Q and A
11.20–11.45
Refreshment Break
11.45–12.05
Heart and Amyloidosis: Current Challenges
Professor Emer Joyce, Consultant Cardiologist, Mater Hospital, Dublin
12.05–12.25
An introduction to AL Amyloidosis and its treatments
Professor Julian Gillmore, National Amyloidosis Centre, London
12.25–12.45
H110D and other variants of ATTR Amyloidosis
Professor Aisling Ryan, Consultant Neurologist, Cork University Hospital
12.45–1.00
Q and A
1.00–2.00
Buffet Lunch
2.00–2.15
Rare Disease Research in Northern Ireland
Dr Grace McMacken, Clinical Lecturer in Neurology, Queen’s University Belfast: LifeArc RD-TAP
2.15–2.45
Gastrointestinal Involvement in Amyloidosis
Video presentation and dial-in Q and A with Professor Anton Emmanuel, Consultant Neuro-Gastroenterologist, UCL, London
2.45–3.05
Wild-Type Amyloidosis in Clinical Practice
Dr Alastair Gray, Consultant Cardiologist, Heart Centre, Craigavon
3.05–3.25
Neurology and Amyloidosis: Current Challenges
Professor Sinéad Murphy, Consultant Neurologist, Tallaght Hospital, Dublin
3.25–3.40
Q and A
3.40–4.00
Refreshment Break
4.00–4.20
Amyloidosis and Imaging
Dr Ross Murphy, Consultant Cardiologist, St James Hospital, Dublin
4.20–4.50
Future Treatments of Amyloidosis
Professor Julian Gillmore, National Amyloidosis Centre, London
4.50–5.00
Q and A and Closing
6.30–7.45 PM
Drinks Reception
8.00 till late
Gala Evening Dinner

Sunday 15 June 2025

9.30–9.40
Opening
9.40–9.50
The Power of Connection
Giovanni d’Allessio, Chair, Amyloidosis Alliance
9.50–10.00
Resources to Support Amyloidosis Patients and Families
Emmanuel Chevron, Mended Hearts Europe, Cardiovascular Support Group
10.00–10.10
Living with AL Amyloidosis: Patient Story
Mark McConway, Scottish Amyloidosis Support Group
10.10–10.20
Living with ATTR Amyloidosis
Anne Marie Carr, Founder, ATTR Amyloidosis Canada
10.20–10.35
Support for Irish Amyloidosis Patients and Families
Úna Sadler and Sinéad Glennon, Muscular Dystrophy Ireland
10.35–10.45
Challenges for Carers: Carer Story
Mervyn Carr, Founder, TTR Amyloidosis Canada
10.45–10.55
Living with Wild-type Amyloidosis
Keith Dares, Canadian Amyloidosis Support Network
10.55–11.20
Panel Discussion: Nursing Perspectives on Amyloidosis Care
11.20–11.35
The Art of Social Prescribing
Geraldine Merendino, Cardiac Rehabilitation, Southern Trust
11.35–11.45
T80A and the Diaspora
Sean Riley, Amyloidosis Speakers Bureau, US
11.45–12.00
Q and A
12.00–12.20
Fostering Resilience
Marie Dunne, Resilio, Derry
12.20–12.30
Closing
12.30–2.00
Farewell Buffet Lunch

Guest speakers

Clinicians, researchers and patient advocates

Prof Julian GillmoreHead of National Amyloidosis Centre, London
Prof Mary ReillyProfessor Neurology, University College London
Prof Emer JoyceConsultant Cardiologist, Mater Hospital, Dublin
Dr Sinéad HughesConsultant Cardiologist, Altnagelvin Hospital, Derry
Rosaline CallaghanAmyloidosis Ireland Conference Host
Prof Sinéad MurphyConsultant Neurologist, Tallaght Hospital, Dublin
Giovanni d’AllessioChair, Amyloidosis Alliance
Prof Anton EmmanuelConsultant Neuro-Gastroenterologist, UCL, London
Paul PozzoChair of Amyloidosis UK
Emmanuel ChevronMended Hearts Europe, Cardiovascular Support Group
Prof Aisling RyanConsultant Neurologist, Cork University Hospital
Marie DunneFounder of RESILIO
Úna Sadler and Sinéad GlennonMuscular Dystrophy Ireland
Keith DaresSecretary, Canadian Amyloidosis Support Network
Sean RileyAmyloidosis Speakers Bureau, US
Mark McConwayScottish Amyloidosis Support Group
Anne Marie CarrFounder, Hereditary Amyloidosis Canada
Mervyn CarrFounder, Hereditary Amyloidosis Canada
Dr Ross MurphyConsultant Cardiologist, St James Hospital, Dublin
Dr Alastair GrayConsultant Cardiologist, Craigavon Area Hospital
Geraldine MerendinoCardiac Rehab, Southern Trust
Cathy FarrellRANP Heart Failure Integrated Care, Letterkenny
Dr Grace McMackenClinical Lecturer in Neurology, Queen’s University Belfast

2022

Looking for the 2022 conference?

View the full programme, speakers and talks from Ireland's inaugural amyloidosis conference — Emerging from the Shadows.

Open 2022 conference