Understand amyloidosis
Learn what amyloidosis is, how ATTR differs from other types, and why early recognition matters.
Helping you move from uncertainty to understanding
Support, awareness and advocacy for amyloidosis patients, families and caregivers across Ireland.
Get informed
The essentials
Spot symptoms sooner
Symptoms can cross neurology, cardiology and gastrointestinal care. See the common patterns patients report.
Explore treatments
Read about stabilisers, gene-silencing therapies and other treatment developments.
Conference 2025
International Conference: Moving Forward
The 2025 programme brought together leading clinicians, researchers, patient advocates and families for a weekend of talks, panel discussions and connection in Derry.
Documentary
Emerging from the Shadows
Starring Daniel O'Donnell, conference speakers and Amyloidosis Ireland advocates, this short documentary was filmed at our first conference to raise awareness and bring the community together.
Community
Join our community on Facebook
We founded a private support group so patients and families can learn and share their experiences — and a public page for raising awareness.
Private support group
For patients, family members and carers — a safe, private space to learn and share experiences with others.
Join the support groupPublic awareness page
Stay updated on campaigns, events and news. Open to everyone interested in amyloidosis awareness.
Follow the public page