• Patient story: Ann Degan

    Patient story: Ann Degan

    My name is Ann Deegan, and I am one of six children. Four of us have the hereditary amyloidosis Thr60Ala gene. It was the early 90s when I first heard of Familial Amyloid Polyneuropathy. My mum had been diagnosed in St Vincent’s Hospital in Dublin and at that stage, her prognosis was guarded. As a…

  • Patient story: Paddy Doherty

    Patient story: Paddy Doherty

    The breathlessness Paddy experienced on a hillside walk in the autumn of 2020 wasn’t his first sign of heart trouble, but it was the one that finally got him to go to the doctor.

  • Patient story: Bernie and Eibhlin

    Patient story: Bernie and Eibhlin

    Bernie Cannon-Cunningham and Eibhlin Cunningham are from Letterkenny, Donegal. “Amyloidosis burst into our lives in 2017. Until then, we had been tormented and bewildered as to what could be wrong with our mum”.