Patient story: Ann Degan

My name is Ann Deegan, and I am one of six children. Four of us have the hereditary amyloidosis Thr60Ala gene. It was the early 90s when I first heard of Familial Amyloid Polyneuropathy. My mum had been diagnosed in St Vincent’s Hospital in Dublin and at that stage, her prognosis was guarded. As a … Read more

Patient story: Bernie and Eibhlin

Bernie Cannon-Cunningham and Eibhlin Cunningham are from Letterkenny, Donegal. “Amyloidosis burst into our lives in 2017. Until then, we had been tormented and bewildered as to what could be wrong with our mum”.